ABC 4 Maddy

While it seems a long time from now, believe it or not, it is time to start thinking about the 2012 Relay For Life which will be held on June 8, 2012.  Deb, Cindy, and Jen are again co-chairing the ABC 4 Maddy team.  The team is registered and everyone is welcome to join our team, make a donation, or just join us in June.  To check out our team, make a donation (to the team or a specific member) and/or join our team, go to:

http://main.acsevents.org/site/TR?pg=entry&fr_id=36779


P.S. - Maddy is a little tired and grumpy this week, but otherwise, doing well.  She is due back to the clinic on Friday for another treatment.  

Friday Update

Maddy's fever broke and all the cultures came back negative, so she was able to come home from the hospital Wednesday evening so she could sleep in her own bed (or should I say Mom and Dad's bed) and eat "good" food.  She had to come back to the PICU on Thursday to start the next phase of treatment, and she is back at the clinic today for another treatment.  Maddy started her steroids too.  It is amazing how quickly they change her mood and just make her feel yucky!  She has already asked that we get stocked up on teriyaki wings!


It is tough to see Maddy go through all of this, and this week was especially rough trying to juggle everything.  It is times like this that we look for something to give us the hope and strength to keep going.  Sometimes this hope and strength comes from the littlest things-  Maddy was sleeping next to me (Mom) last night.  I was tossing and turning having trouble sleeping when Maddy rolled over and just started laughing in her sleep.  There is comfort in knowing that Maddy is still able to have happy dreams and this has given us a renewed strength.  God works in mysterious ways...

Jinx

I think I jinxed Maddy- I said we were hoping for no hospital visits during this phase and Maddy woke up this morning with a 102 fever, so... we are at the hospital. Maddy is on antibiotics. So far, her strep test and flu swab came back negative. We are waiting to see if anything grows in the cultures. Hopefully, it's just a little cold. We are staying the night and will see what tomorrow brings. Maddy is also supposed to have treatments on Thursday and Friday of this week. This is turning out to be a pretty stinky week!

Reinduction

Maddy finally finished up the Intestification 1 phase of treatment. She had last week off of treatment and only needed bloodwork, a physical, and an echocardiogram to get prepared for the next phase of treatment. She also had to get her flu shot while her counts were up. Maddy will start the four week Reinduction phase on Thursday. This phase consists of spinals, a couple different chemo drugs, and STEROIDS- time to stock up on teriyaki wings! This phase is outpatient. We hope to avoid any hospital stays and enjoy this time as much as possible. The next phase is going to be long and hard.