When Maddy relapsed in
February of 2011, Russ and I scoured the web for information on
treatments. We came across a list
serve for parents of ALL kids who had relapsed. Through this site, we met the family of a little boy from
New Zealand named Pete. Pete
relapsed the same time as Maddy.
We would discuss treatments and the journey our kids were on with Pete’s
mom, Bridget. Pete has continued
to fight but has relapsed several more times. There are no more treatments available for him in New
Zealand so his parents are attempting to raise the funds to bring him to the
US for a promising trial at
Children’s Hospital of Philadelphia.
We had talked to the doctors in Philadelphia when Maddy relapsed the
second time, but at that time the trial was not accepting patients with relapse
in the CNS. Now they are and Pete is hoping to get into it. Please visit his Facebook page to
learn how you can help and you’ll see that even kids in New Zealand wear Maddy
shirts!
