Wednesday, August 14, 2013

A Friend Needs Help


When Maddy relapsed in February of 2011, Russ and I scoured the web for information on treatments.  We came across a list serve for parents of ALL kids who had relapsed.  Through this site, we met the family of a little boy from New Zealand named Pete.  Pete relapsed the same time as Maddy.  We would discuss treatments and the journey our kids were on with Pete’s mom, Bridget.  Pete has continued to fight but has relapsed several more times.  There are no more treatments available for him in New Zealand so his parents are attempting to raise the funds to bring him to the US  for a promising trial at Children’s Hospital of Philadelphia.  We had talked to the doctors in Philadelphia when Maddy relapsed the second time, but at that time the trial was not accepting patients with relapse in the CNS. Now they are and Pete is hoping to get into it.  Please visit his Facebook page to learn how you can help and you’ll see that even kids in New Zealand wear Maddy shirts!



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