Yesterday, Maddy had a "diagnostic" spinal tap as part of maintenance and had her PICC line removed. We were so excited- Maddy was finally "free" and she was looking forward to the next four weeks of being able to shower freely and she was even given permission to swim. It was late in the day when she had her procedures, so we did not get any results of the spinal tap before we left the hospital. We received a call today! It was not the news we wanted to hear. Leukemia cells were found in her spinal fluid again. We are in a state of disbelief right now.
Maddy will go back to the hospital on Friday to receive chemo in her spinal fluid and have a bone marrow test- praying that there are no leukemia cells in her bone marrow. She will then go back on Monday to have a catheter put back in and receive another chemo treatment. Depending on the results of her bone marrow test and on the success of getting her back into remission determines our next steps.
Maddy continues to amaze us. She saw her dad and I crying when we received the call from the doctor. I found her in her bed crying. SHE KNEW! She asked "Why?" and said she just wanted to have hair again. I reminded her that God had a plan for her and that she could do this. She cried for her sister who was in her room crying. We all hugged and cried a little longer. Then Maddy jumped up and said that we had better go swimming while she had the chance, so we went out and rented a room at the Heritage Inn and Maddy swam and swam and swam... we get our strength from her!
Praying, praying, praying......
ReplyDeleteIt's so true.... the ones we intend to bless by our words and actions end up being the blessing to us.
ReplyDeleteOn our knees in intercession for each of you.
Yes, Maddy is one amazing kid! Truly amazing! Love you kiddo! Stay strong. I know you will!
ReplyDeleteHi Maddy!!!!!
ReplyDeleteYou can do it! You have the best Mom and Dad and Sister there cheering you on! You have lots of others there in your cheering section too! I keep asking the same thing as you Maddy. I keep asking "Why? Why? Why?" Just remember what your Mom said, God has a special plan for you and you can do whatever it takes to make His plans for you work!!!!
Dorothy: Please, please, please ask me for whatever you need! Don't forget I am your old retired friend and I have time on my hands. I will do anything you want me to do!
I went to church tonight and prayed for Maddy, for a miracle, for Maddy's whole family, for strength and courage and for a peace that passes all possible understanding.
Hang in there! Prayers are coming your way!!!
Lots of love to Miss Maddy Mushroom from Lucy Petunia
Praying for your family and maddy during this hard time in life
ReplyDeletePraying for you Maddy! Praying for healing and strength and encouragement!
ReplyDeleteWe are praying in IL.and we haven't stopped in this journey with you. May you all experience His peace, love and joy and follow Maddy's lead. What a trooper! GO MADDY. WE LOVE YOU!!!
ReplyDeleteMrs. Hill
Maddy, Julia, Dorothy and Russ...our family continues to pray for all of you! Stay strong and know that many people are keeping you in prayer.
ReplyDeleteMaddy.... I am praying for you. You are a strong girl...,you can do this! I'll make sure things are under control at team 1 at school on Monday if you're not there. And I will let you know if Spencer makes any more turtle man jokes.
ReplyDeletePrayers,
Mason
Embracing all of you with a magnitude of prayers and hugs! I know it is so hard to question: WHY?! But remember, no one loves Maddy more than our heavenly Father and He has great plans for her. Some day Maddy's body will be as strong as her faith...hold on until then.
ReplyDeleteAnd hope does not disappoint us, because God has poured out His love into our hearts by the Holy Spirit, whom He has given us.~Romans 5:5
ReplyDeleteHey Dorothy, Julie, and Maddy! It's me Angelina. I just wanted to let you know I'm thinking of and praying for you and so are my family & friends...which is easily an extra 100-200 people. I'm glad you were able to anjoy some swimming and have those awesome new shoes to draw some strength from. There's no one like you Maddy and not another pair of shoes in the whole world like them either. Lots of hugs sent your way and please don't hesitate to let me know if there's anything I can do. Especially if you find yourself with some free time and want to make some tutu's I'll buy the stuff and meet you whereever! Take care
ReplyDeleteOh no! I am so incredibly sorry to read that. I don't know if you still follow Pete's CB, but he went through the same thing in early August, and is now doing great. But it is a pile of added stress and anguish which you definitely don't need. Love and hugs to you all.
ReplyDeleteMaddy is one incredible girl. With her determination and attitude, I know she can get through this.
Hugs,
Bridget and Pete
Maddy, we are praying for you. You are a strong girl and we know you can get through this. I hope to see you at school. Sending a big hug your way.
ReplyDeleteLove Megan :)
Lambert family, We send you prayers of Love and Strength especially in the next few weeks as Maddy's new course of treatment begins. Not only has our family drew strength from watching Maddy over the past 3 years we have been in awe of your entire family. The faith and love you "4" share is an inspiration to many. Please continue to stay strong ! God bless you all. Love, Sharon Lutz
ReplyDeleteSTAY STRONG Miss Mushroom!!!!
ReplyDeleteRemember: GOD IS GOOD ALL THE TIME; ALL THE TIME GOD IS GOOD!
Lots of love and prayers from Lucy Petunia :)
Maddy,
ReplyDeleteYou are a ROCK STAR! Keep smiling and I will continue to send positive prayers and healing energy to you as we continue on our journey.
Always remember that "Bald IS Beautiful!" (WE know that to be true.) :)
Smiles, love and all of your favorite things,
Tanny ;) (Your other principal friend)
Our prayers go to you and your family Maddy. You are such an amazing kid.God is love and his mercy endures forever.
ReplyDeleteYou are a Rock Star, Maddy May! No one's gonna tell you that this doesn't stink...because it does. But...you are one amazing girl, and we all know that you can do this! You also have a pretty amazing mom and dad and a super amazing big sister that will help you every step of the way! You know we are all here for you, and we'll do anything you need. God has BIG plans for you, girlfriend!!! Sending a great big hug your way!!
ReplyDeleteLove,
Mrs. Hurst
P.S. What are these "Turtle Man" jokes? Should I be monitoring table 1 a little better? :-)
Maddy,Russ, Dorothy andy Julia,
ReplyDeleteWe're all praying for you and your family. You're an amazingly strong little girl who has been through a lot. You have wonderful parents and a sister that are there for you. We're praying that God will give you the strength to get through this.
Love,
Kevin, Jen and Mallory