Maddy's White Blood Count went up to 700 and her Absolute Neutrophil Count was 420 this morning. She slept well last night and woke up this morning feeling good, so when the doctor came in to see us, she said we could come home. Of course it took all day to get ready. Maddy needed a red blood cell transfusion before she could leave. We also needed to get many prescriptions filled, our monthly calendar to keep everything straight, and a delivery from Toledo IV with the shots that we have to continue to give Maddy at home for a while longer. Then, I had to pack the room up and get everything loaded. Luckily, Maddy's nurse got me a cart to use. I did get some funny looks as I pushed the cart full of stuff through the halls to the parking garage! I only had to make three trips! : ) We pulled into our driveway at 7:15 PM.
We are definitely happy to be home, but it is a little overwhelming too. Russ and I sorted through the seven prescriptions we came home with and got the BIG pill case out again. We have a visiting nurse coming tomorrow to show us how to give Maddy her shots. We have to go back to the hospital on Friday for blood work and possibly transfusions if they are needed. Depending on how Maddy is doing next week, we may need to go back to the clinic on Monday and Thursday or have the visiting nurse come to draw blood. Then, as soon as Maddy's counts reach a certain point, she will be back in the hospital to start the next induction phase. Then, we have to make "the decision"...
We have been taking it day by day lately just to get through all of this, but now we are being forced to look ahead and it makes it a lot more difficult. We have to remind ourselves to take advantage of every good moment.
A quote that a friend who has gone through a similar situation shared with us comes to mind:
Anticipating how the story might go only keeps us from enjoying how the story is going.
So we will enjoy being home and celebrating Easter together and face the next challenge as it comes!
Thrilled for you all that Maddy is home and you can all be together. Blessings on you this Easter time.
ReplyDeleteI tend to think in song so when you have time, here is one of my favorites. Plus it reminds me of Miss Heckel. Love, Mrs. Hill
Don Moen - God Is Good All The Time lyrics
Chorus:
God is good all the time
He put a song of praise in this heart of mine
God is good all the time
Through the darkest night, His light will shine
God is good, God is good all the time
If you're walking through the valley
And there are shadows all around
Do not fear, He will guide you
He will keep you safe and sound
'Cause He's promised to never leave you
Nor forsake you and His Word is true
Chorus
We were sinners - so unworthy
Still for us He chose to die
Filled us with His Holy Spirit
Now we can stand and testify
That His love is everlasting
And His mercies - they will never end
Chorus
Lord I may not understand
All the plans He left for me
My life is in your hands
And through the eyes of Him I can clearly see
Chorus
What great news!!! We celebrate Maddy's homecoming and continue to pray for you all as you recover and look to make decisions. Blessings!
ReplyDeleteTHe Reicherts
So happy to see that you are home. We are hoping for a very uneventful holiday weekend for the Lambert Family with lots of rest.
ReplyDeleteOur thoughts and prayers are always with you.
Jason, Helen, Liam, and girls
WELCOME, WELCOME, WELCOME, WELCOME, WELCOME, WELCOME Home!!!!!!!!!!!! Just knowing you are home for Easter has put smiles on a lot of faces! Be careful and watch out for the Bunny; you never know when he just may be hopping past your place!
ReplyDeleteHere's somer Easter jokes with the answers spelled backwards:
What do you call a bunny with a large brain? !daehggE
Q. What kind of beans never grow in a garden?
A. !snaeb ylleJ
Q. What do you call a rabbit who tells jokes?
A. .ynnub ynnuf A
Now here is a "Knock, Knock Joke"
Knock, Knock
Who's there?
Lettuce
Lettuce who?
Lettuce decorate some eggs.
Love,
Miss Heckel
Awesome news Maddy!! Did you get a chance to make that frog yet? Your mom said you have been making all kinds of cool artwork!! Enjoy your time at home! With love, Mrs. Rosene
ReplyDeleteAwesome news!!! Enjoy your Easter holiday weekend!
ReplyDeleteHi Maddy,
ReplyDeleteI was really happy that you are home & i got to see you today on skype. Who do you think was the Easter Bunny? I think it was Mrs. Ziegler. I hope you have a hoppy easter.
Love
Megan ;)
Hi Maddy
ReplyDeleteIt is Alyssa! i hope you have a great easter! im really glad you are home from the hospital!! i hope we can skpe with your next week at school! did you like the braclet me and megan made for you and the card??!! i love you maddy! xoxo God bless you :)
love Alyssa :)